Symposium: Privacy, Data Protection and Data-Sharing in Biomedical Research

Co-organized by
Centre for Medical Ethics and Law, the University of Hong Kong, and the
Law and Technology Centre, the University of Hong Kong

Privacy, Data Protection and Data-Sharing in Biomedical Research*

Date: April 11, 2018 (Wednesday)
Time: 2pm – 5pm
Venue: Academic Conference Room, 11/F, Cheng Yu Tung Tower, the University of Hong Kong

Abstract:

The collection, accumulation and aggregation of very large datasets of medical information for ‘Big Data’ mining applications and analysis is assuming a central role in biomedical research.  Concurrently, researchers throughout the world are also seeking ways to share medical, genetic and genomic information both nationally as well as across borders: researchers ultimately work with data, and pure information in digital form is often subject to fewer regulatory restrictions on movements across borders, or between groups of researchers.  This workshop seeks to examine the impact of such new technologies on current regulatory paradigms for the protection of privacy of individuals, and as well as regulatory responses for data protection and data-sharing in the context of biomedical research.  Approaches in some key jurisdictions of relevance to Hong Kong are compared, and the likely shape of future regulatory responses in this area explored.

Speakers and Panelists:

  • Dr Clement Chen (Faculty of Law, the University of Hong Kong)
  • Professor Anne Cheung (Faculty of Law, the University of Hong Kong)
  • Dr David Erdos (Senior Lecturer in Law and the Open Society, University of Cambridge)
  • Dr Jeff Skopek (Lecturer in Medical Law, Ethics and Policy, University of Cambridge)

More details are available at: http://www.cmel.hku.hk/events/privacy-data-protection-and-data-sharing-in-biomedical-research/.

Please register as soon as possible: https://hkuems1.hku.hk/hkuems/ec_hdetail.aspx?guest=Y&ueid=55488.

*Note: This symposium is Part II of a full-day symposium on April 11.  The symposium of Part I titled “Policy and Regulatory Responses to New Genomic and Reproductive Technologies” will be held from 9:15am – 1pm on the same day at the same venue.  More information about Part I and its registration can be found at http://www.cmel.hku.hk/events/policy-and-regulatory-responses-to-new-genomic-and-reproductive-technologies/.

Part I programme: http://www.cmel.hku.hk/content/uploads/2018/03/Programme-rundwon-Part-I-27.03.2018-3.pdf
Part II programme: http://www.cmel.hku.hk/content/uploads/2018/03/Programme-rundwon-Part-II-28.03.2018-Final.pdf

For inquiries, please contact Ms. Yun Ling Au of CMEL by email at auling@hku.hk or by phone at 3917-1845.